Kodi Spina Bifida Ndi Vuto Lamafupa?

Inde, spina bifida ndi vuto kuwonongeka kwa mafupa & msana . Chizindikirochi chimagwiritsidwa ntchito pazachipatala komanso kusukulu. Spina bifida imakhudza msana, minofu, ndi momwe anthu amasunthira. Izi ndizofunikira ngati mumagwira ntchito yazaumoyo, masukulu, kapena kugawa. Momwe spina bifida imalembedwera imatha kusintha yemwe amalandira chithandizo ndi chithandizo.

• Chizindikiro cha spina bifida ngati kufooka kwa mafupa & msana kumatha:

• Sinthani chisamaliro chomwe mumapereka kwa wina.

• Zimakhudza ngati munthu angapeze thandizo lachipatala kapena kusukulu.

• Pangani kusiyana mu kafukufuku ndi momwe mautumiki amaperekedwa.

Ku United States, pafupifupi mwana mmodzi pa 2,875 aliyense amabadwa ndi matenda a msana. Mutha kuwona zochitika zambiri m'mabanja aku Spain. Kudziwa momwe spina bifida imayenderana ndi chisamaliro cha mafupa & msana kumakuthandizani kuthandiza anthu omwe amafunikira kwambiri.

Zofunika Kwambiri

• Spina bifida ndi vuto la mafupa. Zimakhudza mmene anthu amasunthira. Anthu amene ali ndi vutoli amafunikira chisamaliro chapadera.

• Kutchula dzina la spina bifida kumathandiza anthu kupeza chithandizo. Atha kupeza chithandizo choyenera chamankhwala ndi kusukulu.

• Kuyendera dokotala pafupipafupi komanso kulandira chithandizo kungathandize anthu kuyenda bwino. Zinthu zimenezi zingawathandizenso kukhala odziimira paokha.

• Masukulu amapereka chithandizo chapadera monga ma IEP ndi 504 Plans. Mapulani amenewa amathandiza ophunzira omwe ali ndi matenda a spina bifida kuti azichita bwino kusukulu.

• Ukadaulo watsopano pakusamalira msana umapereka zosankha zabwinoko zamankhwala. Izi zimathandiza anthu omwe ali ndi vuto la msana kuti asamalire bwino.

Chidule cha Orthopedic & Spine Impairment

Kodi Kuwonongeka Kwa Mafupa Ndi Chiyani?

Mutha kumva 'mafupa & msana' mzipatala ndi masukulu. Kuwonongeka kwa mafupa kumatanthauza kuti pali vuto lalikulu ndi mafupa, minofu, kapena mitsempha. Vutoli limapangitsa kukhala kovuta kusuntha kapena kuphunzira. Madokotala ndi aphunzitsi amagwiritsa ntchito chizindikirochi kuti akupatseni chithandizo choyenera. Spina bifida ikugwirizana ndi tanthauzo ili chifukwa msana ndi msana sizipanga asanabadwe. Izi zimabweretsa zovuta pakusuntha komanso kuphunzira nthawi zina.

Nali tebulo lomwe likuwonetsa momwe akatswiri amafotokozera kuwonongeka kwa mafupa:

Mutha kuwona kuti spina bifida ili m'matanthauzo onse azachipatala komanso kusukulu. Izi zikutanthauza kuti inu kapena mwana wanu mutha kupeza chithandizo ngati spina bifida ipangitsa moyo kukhala wovuta.

Matenda a msana ndi zotsatira zake

Mavuto ambiri a msana amatha kusintha momwe mumasunthira ndikukhala. Spina bifida ndi imodzi mwazovuta za msana kuyambira pakubadwa. Zimachitika pamene msana ndi msana sizitseka njira yonse asanabadwe. Izi zingayambitse minofu yofooka, kulephera kusuntha, kapena kusamva zinthu. Mutha kukhala ndi vuto loyenda kapena kuyimirira. Nthawi zina, spina bifida imayambitsa scoliosis kapena zovuta zolumikizana, zomwe zimapangitsa kusuntha kukhala kovuta.

Mavuto ena a msana, monga idiopathic scoliosis, amakhudzanso ana. Idiopathic scoliosis ndi vuto lofala kwambiri la msana kwa ana. Zimachitika pafupifupi 0.5% mwa ana ndipo zimawonekera kwambiri mwa atsikana.

Ngati muli ndi spina bifida, mungazindikire izi:

• Minofu yofooka kapena kusayenda kumapangitsa kuyenda kapena kuyima molimba.

• Kusamva zinthu kungapangitse kukhazikika komanso kuyenda movutikira.

• Scoliosis ndi zovuta zolumikizana zimatha kukhala zovuta kusuntha.

• Mavuto a chikhodzodzo ndi matumbo akhoza kukulepheretsani kulowa nawo ntchito.

Chithandizo ndi zida zingakuthandizeni kuthana ndi matenda a msana. Thandizo lolimbitsa thupi limathandiza kuti minofu yanu ikhale yamphamvu. Thandizo lantchito limakuphunzitsani kugwiritsa ntchito zida zapadera. Zinthu monga njinga za olumala zimakuthandizani kuti muziyenda. Kusamalira chikhodzodzo ndi matumbo kumakupatsani mwayi wolowa nawo m'moyo watsiku ndi tsiku.

Kusamalira mafupa ndi msana kumakupatsani chithandizo chomwe mukufuna. Spina bifida ndi chitsanzo chabwino cha kuwonongeka kwa mafupa omwe amafunikira chisamaliro chapadera.

Spina Bifida Gulu

Malingaliro a Zamankhwala pa Spina Bifida

Madokotala ndi akatswiri ali ndi njira zopangira gulu la spina bifida. Spina bifida ndiye vuto lalikulu la neural chubu. Zimachitika pamene neural chubu sichitseka asanabadwe. Vutoli limakhudza msana ndipo limayambitsa zolemala zambiri. Madokotala amatcha spina bifida onse kuwonongeka kwa mafupa komanso matenda a neuromotor. Izi zikutanthauza kuti zimakhudza mafupa anu, minofu, ndi mitsempha.

Madokotala amagwiritsa ntchito malamulo awa kuti apange gulu la spina bifida:

• Kuwonongeka kwakukulu kwa mafupa kumasintha momwe mumasunthira kapena kuchita.

• Kuwonongeka kwa Neuromotor kumachokera ku zovuta mu ubongo, msana, kapena mitsempha.

• Spina bifida ndi matenda obadwa nawo, choncho amapezeka pobadwa.

• Spina bifida ikhoza kukhala yofatsa (spina bifida occulta) kapena yoopsa (spina bifida cystica).

Mutha kuwona spina bifida ikutchulidwa ngati chifukwa cha kuwonongeka kwa mafupa m'mabuku. Mkhalidwewu nthawi zambiri umabweretsa kufooka kwa minofu, kufa ziwalo, kapena kuyenda movutikira. Mavuto ambiri okhudzana ndi matenda a spina bifida ndi monga kupunduka kwa msana, mavuto a chiuno, ndi mgwirizano wa mgwirizano. Nkhanizi zingapangitse moyo watsiku ndi tsiku kukhala wovuta.

Nawa zovuta za mafupa omwe mungakhale nawo ndi spina bifida:

• Kupunduka kwa msana monga scoliosis ndi kyphosis ndizofala kwambiri ngati muli ndi zotupa zazikulu za neurologic.

• Kupunduka kwa miyendo ya m'munsi, monga kugwedeza kwa m'chiuno kapena kusuntha, nthawi zambiri kumachitika chifukwa cha kusalinganika kwa minofu.

• Kuphatikizika kwa chiuno kapena bondo ndi kupunduka kozungulira kumatha kusintha momwe mumayendera kapena kuyenda.

Madokotala amaonanso mavuto ena amene amadza ndi matenda a msana. Mukhoza kukhala ndi hydrocephalus, kusadziletsa kwa chikhodzodzo, kapena chiopsezo chachikulu cha matenda a mkodzo. Chisamaliro cha mafupa a spina bifida chimafunikira gulu. Mutha kugwira ntchito ndi ma neurosurgeons, urologists, ndi akatswiri obwezeretsa. Cholinga chachikulu ndikukuthandizani kuti musunthe bwino ndikuwongolera moyo wanu, osati kungokonza momwe msana wanu umawonekera pa X-ray.

Akatswiri azachipatala amagwiritsa ntchito matanthauzowa pofotokoza spina bifida ndi zotsatira zake za mafupa:

Muyenera kuyezetsa pafupipafupi kuti muwone kusintha kwa kayendedwe, kamvedwe, mawonekedwe a msana, ndi thanzi la khungu. Opaleshoni ingafunike kuti mukonze zolakwika kapena kukuthandizani kuyenda bwino.

Gulu la Maphunziro ndi Kuyenerera

M’sukulu, matenda a msana amatchedwanso kuwonongeka kwa mafupa. Izi zimakuthandizani kuti mupeze chithandizo chomwe mukufuna kuti muphunzire ndikukula. Masukulu amagwiritsa ntchito njira zomveka bwino kuti awone ngati mungapeze thandizo lapadera:

• Muyenera dokotala kuti akuuzeni kuti muli ndi spina bifida.

• Sukuluyi idzayang'ana zomwe mungachite ndi zomwe mukufuna.

• Kuwonongekaku kuyenera kukupangitsani kukhala kovuta kuti muchite bwino kusukulu.

Spina bifida ndi matenda obadwa nawo a mafupa. Zingakhudze momwe mumayendera, kugwiritsa ntchito manja anu, kapena ntchito za tsiku ndi tsiku. Masukulu amayang'ana zovuta zakuyenda, kugwiritsa ntchito manja, kulumikizana, kapena luso latsiku ndi tsiku. Ngati spina bifida imapangitsa zinthu izi kukhala zovuta, mutha kupeza chithandizo chowonjezera.

Kuti muyenerere, muyenera:

• Umboni wosonyeza kuti kuwonongeka kwa mafupa kumakhudza ntchito yanu ya kusukulu.

• Lipoti la dokotala la chaka chatha.

Masukulu aboma ayenera kupeza ndi kuthandiza ophunzira olumala. Ngati muli ndi spina bifida, mutha kupeza Individualized Education Program (IEP) kapena 504 Plan. IEP ndi ndondomeko yopangidwa ndi makolo ndi aphunzitsi anu. Imatchula chithandizo chomwe mukufuna, monga chithandizo kapena zida zapadera. Mapulani a 504 amakupatsani zosintha m'kalasi mwanu, monga nthawi yochulukirapo kapena desiki lapadera.

Nali tebulo lomwe likuwonetsa momwe masukulu amapangira spina bifida:

Mutha kupeza zothandizira izi kusukulu:

• Nthawi yowonjezera yopita ku kalasi kapena kumaliza ntchito.

• Mpando pafupi ndi khomo ngati mugwiritsa ntchito chikuku kapena choyenda.

• Mayendedwe omwe ndi osavuta kugwiritsa ntchito.

• Thandizani kusuntha pakati pa makalasi kapena panthawi yoboola moto.

• Nthawi yochulukirapo yoyeserera.

• Kupuma pafupipafupi.

• Thandizani polemba manotsi.

• Madesiki kapena matebulo omwe angasinthidwe.

• Technology ngati mapulogalamu kuzindikira mawu.

Spina bifida ndi vuto lomwe limafunikira chithandizo chamankhwala komanso kusukulu. Mutha kupeza chithandizo cha kulumala kwanu komanso zosowa zanu zophunzirira. Thandizoli limakuthandizani kukwaniritsa zolinga zanu ndikulowa nawo kusukulu.

Zotsatira za Kuwonongeka kwa Orthopaedic

Kupeza Ntchito ndi Thandizo

Ngati muli ndi spina bifida, kutchedwa kufooka kwa mafupa kumakuthandizani kupeza chithandizo chochulukirapo. Chizindikirochi chimakupatsani mwayi wopeza chithandizo chamankhwala komanso kusukulu. Spina bifida ndi vuto la msana lomwe limayamba musanabadwe. Ndicho chifukwa chachikulu ana ena ali ndi vuto la mafupa. Kuwonongeka kwa mafupa kumatha kuchitika chifukwa chovulala kapena kubadwa, koma spina bifida ilipo kuyambira pachiyambi.

Mungafunike thandizo powerenga, kulemba, kapena kusuntha. Sukulu ndi zipatala zimapereka chithandizo chamitundumitundu. Nali tebulo lomwe likuwonetsa ntchito zina zomwe mungapeze:

Mungafunikenso zida zapadera kuti zikuthandizeni kusuntha. Kugwiritsa ntchito njinga ya olumala kapena choyenda mofulumira kungakuthandizeni kuyenda. Ana ambiri amene ali ndi vuto la msana amagwiritsira ntchito ndodo, ziboliboli, kapena njinga za olumala. Gawo 504 la Rehabilitation Act limawonetsetsa kuti mutha kupeza zida ndi ntchitozi kusukulu.

Kuwunika ndi Kuwongolera Kwamafupa

Anthu omwe ali ndi vuto la msana amafunika kuyesedwa pafupipafupi kuti aone mafupa ndi minofu yawo. Madokotala amayang'ana msana wanu, chiuno , ndi miyendo kuyimitsa kapena kukonza mavuto. Kusuntha msanga, ngakhale pang'ono, kumakuthandizani kuti mukhale odziimira. Nthawi zina, mungafunike opaleshoni kuti mukonze momwe mukusunthira.

Madokotala amagwiritsa ntchito mayeso apadera kuti awone momwe mukuyendera. Izi zimawathandiza kudziwa ngati mukufuna opaleshoni kapena chisamaliro china. Scoliosis ndi kyphosis ndizovuta za msana mu spina bifida. Mavuto a m'chiuno ndi m'mapazi amafunikanso kuyang'aniridwa. Chithandizo chingakhale zingwe zomangira, opaleshoni, kapena zolimbitsa thupi.

Kupeza chithandizo mwamsanga kumabweretsa thanzi labwino pamene mukukula. Kukonza mavuto posachedwa kumakuthandizani kuti mukhalebe otanganidwa. Ndi chisamaliro chabwino, mutha kusuntha bwino ndikuchita zambiri nokha. Chisamaliro chabwino cha msana ndi kuyendera dokotala pafupipafupi kumakuthandizani kukhala ndi moyo wabwino.

Kusiyana & Malingaliro

Mafupa vs. Zowonongeka Zina

Mutha kudabwa kuti kuwonongeka kwa mafupa kumasiyana bwanji ndi kulumala kwina. Kuwonongeka kwa mafupa kumakhudza kwambiri mafupa anu, minofu, ndi mfundo. Izi zingapangitse kusuntha, kuyenda, kapena kuchita zinthu zatsiku ndi tsiku kukhala zovuta. Ngati muli ndi vuto lobadwa nalo monga spina bifida, mungafunike kuthandizidwa kuti musunthe kapena kugwira ntchito za tsiku ndi tsiku. Kuwonongeka kwa mafupa ndi chifukwa chachikulu chomwe ana ena amavutikira kusuntha.

Zolemala zina, monga kuwonongeka kwa neuromotor, zimakhudza ubongo ndi mitsempha yanu. Izi zingapangitse kuti zikhale zovuta kusuntha kapena kulamulira thupi lanu. Kuwonongeka kwa Neuromotor nthawi zambiri kumafunikira thandizo lochulukirapo, monga zida zapadera ndi kuphunzitsa. Mungagwiritse ntchito mabwalo, njinga za olumala, kapena zipangizo zina poyendayenda kusukulu kapena kunyumba. Kuwonongeka kwa mafupa nthawi zambiri kumafuna kusintha kwa malo anu, monga zitseko zazikulu kapena madesiki apadera.

Nazi kusiyana kwakukulu:

• Kuwonongeka kwa mafupa kumakhudza minofu ndi mafupa anu ndikupangitsa kuyenda molimba.

• Kuwonongeka kwa Neuromotor kungayambitse mavuto aakulu, monga kuvutika maganizo kapena kuphunzira.

• Mungafunike zida zapadera zonse, koma mtundu ndi kuchuluka kwa chithandizo zitha kukhala zosiyana.

Kusiyanasiyana kwa Milandu ya Spina Bifida

Osati nkhani iliyonse spina bifida ndi chimodzimodzi. Mtundu ndi momwe chilemacho chilili choyipa chingasinthe chithandizo chomwe mukufuna. Mitundu ina ya spina bifida imangoyambitsa mavuto ang'onoang'ono. Ena angapangitse moyo kukhala wovuta kwambiri.

Myelomeningocele ndi mtundu wovuta kwambiri. Nthawi zambiri zimayambitsa kulumala ndi kutaya kumverera m'miyendo yanu. Mungafunike opaleshoni ndi chisamaliro kwa nthawi yaitali. Mtundu uwu nthawi zambiri umatchedwa kuwonongeka kwa mafupa. Mitundu ina, monga occulta, sangafunikire chithandizo chotere.

Mutha kukhala ndi spina bifida kuyambira pakubadwa kapena kukhala ndi vuto la mafupa chifukwa chovulala pakubadwa. Zomwe mukufunikira zimatha kusintha mukamakula. Madokotala ndi aphunzitsi amayang'ana zomwe mungachite ndi zomwe ziri zovuta kwa inu. Kugwiritsa ntchito zida zapadera koyambirira kungakuthandizeni kusuntha ndikulowa nawo ntchito.

Chidziwitso: Aliyense amene ali ndi spina bifida ndi wosiyana. Dongosolo lanu la chisamaliro liyenera kugwirizana ndi zosowa zanu ndi zolinga zanu.

Mwaphunzira kuti spina bifida ndi vuto la mafupa. Izi ndizofunikira kwa madokotala, aphunzitsi, ndi anthu omwe amapereka zida zamankhwala. Kugwiritsa ntchito chizindikiro choyenera kumathandiza anthu omwe ali ndi vuto la msana kupeza chithandizo chomwe akufunikira. Ogwira ntchito zachipatala ayenera kukumbukira zinthu izi:

1. Spina bifida, makamaka myelomeningocele, imagawidwa ndi momwe minofu imagwirira ntchito.

2. Myelomeningocele Functional Classification (MMFC) imathandizira kukonza chisamaliro.

3. Anthu omwe ali ndi MMFC1 amafunikira thandizo lochulukirapo kuti aletse mafupa osweka ndi zilonda.

Kugwiritsa ntchito zilembo zoyenera m'masukulu ndi zipatala kumathandiza anthu kuchita bwino:

• Mukhoza kupereka chithandizo choyenera kwa munthu aliyense.

• Mapulani apadera amathandiza ophunzira kuchita bwino kusukulu ndi chinenero.

• Thandizo labwino limathandiza anthu kukhala odziimira okha.

Tekinoloje yatsopano ya msana, monga MRI yopangira opaleshoni komanso opaleshoni ya robotic, imapangitsa chisamaliro chabwino kwa anthu omwe ali ndi spina bifida. Zida zatsopano ndi izi:

Palibe mankhwala a spina bifida, koma zida zoyenera ndi chisamaliro zingapangitse moyo kukhala wabwino. Sankhani XC Medico ngati mnzanu wodalirika pamayankho a msana. Spine System yathu imakupatsirani zabwino, malingaliro atsopano, ndi chithandizo pazosowa zilizonse zamafupa.

FAQ

Kodi spina bifida nthawi zonse imawonedwa ngati vuto la mafupa?

Spina bifida imatchedwa kuwonongeka kwa mafupa m'masukulu ndi zipatala. Anthu ambiri omwe ali ndi myelomeningocele amakhala ndi chizindikiro ichi. Milandu yocheperako ingafunike macheke ambiri.

Ndi mautumiki ati omwe mungapeze ngati muli ndi spina bifida?

Mutha kupeza chithandizo chamankhwala komanso chithandizo chantchito. Zothandizira kuyenda ndi maphunziro apadera amaperekedwanso. Masukulu angakupatseni IEP kapena 504 Plan. Madokotala angakulimbikitseni kuyika ma brashi kapena opaleshoni.

Kodi spina bifida imakhudza bwanji kuyenda kwanu?

Spina bifida imatha kufooketsa minofu yanu. Kuyenda ndi kusuntha mafupa kungakhale kovuta. Mungafunike kuthandizidwa kuti muzitha kuyenda bwino kapena kugwiritsa ntchito njinga ya olumala. Kuyendera madokotala pafupipafupi kumakuthandizani kuti mukhale otanganidwa.

Kodi spina bifida ingasinthe pamene mukukula?

Zosowa zanu zimatha kusintha mukamakula. Mungafunike zida zatsopano kapena machiritso. Madokotala ndi aphunzitsi asintha dongosolo lanu la chisamaliro pamene mukukula.

Ndi zida ziti zomwe zimathandizira kuthana ndi zovuta zamafupa kuchokera ku spina bifida?

Mukhoza kugwiritsa ntchito njinga za olumala, zoyenda pansi, ndi zingwe kuti zikuthandizeni kuyenda. XC Medico's Spine System imapereka ma implants amphamvu ndi zida zosamalira bwino msana.